September 2, 2016

Outer Shell Team

Ogo Maduewesiogo-maduewesi-200, Founder/CEO

Ogo Maduewesi is an Ashoka fellow/Making More Health Fellow, a Social entrepreneur, a patient leader, a public speaker, an aspiring writer and a Body Confidence/Positive Body Image advocate. She is deeply passionate and concerned about the psycho-social wellbeing of Sub-Shahran Africans living with non-communicable chronic Skin conditions, disfiguring Appearances, body image issues and stimulating Diversity in Skin Colour and Appearance.

Ogo Maduewesi is a pacesetter; a Vitiligo patient leader. the founder/CEO of Vitiligo Support and Awareness Foundation – VITSAF, the first Vitiligo patient-driven organisation in Sub-Saharan Africa. In her, 10years of experience as a non-profit professional, Ogo has inspired, contributed immensely to the Vitiligo community globally, building up an invaluable network of Vitiligo support groups in Sub-Saharan Africa and abroad. Living with Vitligo, a condition in which the pigment is lost from areas of the skin, causing whitish patches, often with no clear cause, Ogo has gone through the various stages of the condition; including the psycho-social effects, it brings to the patient, especially the loss of self-confidence. Living to tell the tale, Ogo lives to serve people who are going through the same situation, inspire, educate and build them on how to manage, live and or overcome the struggles. Ogo’s work with Vitiligo inspired Outer Shell Africa. She is a founding Director at International Alliance of Dermatology Patient Organization –IADPO.

izu-ojukwu-200Izu Ojukwu, Filmmaker (Partner in Film and TV production)

Izu Ojukwu is a respected, multiple award-winning top Nigerian film director and filmmaker. A very detailed filmmaker; he is meticulous, prudent and world class. Izu’s directing and production quality is top notch. He has got over 15 top rated films to his credit.

Izu was once touted as the “Steven Spielberg of Nigeria” as he worked predominantly on action films. Izu is a technically driven director known for his unorthodox camera work and visuals. Izu went to the New York Film Academy, where he studied Filmmaking and Directing.

Izu Ojukwu is the CEO and Creative Director of House of Illusion.  He has Directed and continues to support all awareness and enlightenment productions of Vitiligo Support and Awareness Foundation – VITSAF  from inception. Working with VITSAF inspired Izu’s interest in Skin conditions & Appearance-related concerns, especially the psycho-social challenges of it all.

 

disha-aroraDisha Arora, Communications Consultant

Disha is a development communication professional and a documentary filmmaker based in India. She has worked with various nonprofit organizations across the country, on a number of issues ranging from climate change to education to women’s rights. She is currently working on a self-initiated, an independent documentary on Women and Religion in India. Being a feminist, she is a firm believer of equality and strives to build a gender just world for women and girls by using communication as a tool.

She is associated with Outer Shell Africa as a Communications Consultant and provides her services voluntarily. She assists in developing communication campaigns and materials for the enterprise.

 

Darlington Ekene Ogugua, Content Manager

Darlington Ekene Ogugua is a final year medical student who is enthusiastic about everything related to Editing, Writing, Public Relations and Public Health. He feels Africa would be a healthier place if her people are exposed to the right information about their health.

He currently volunteers as the PR Officer for SMILE with Me Initiative, a non-profit NGO aiming to inspire hope and reduce mortality rates in Africa through health education and provision of health aids. He also serves as the current Editor-in-chief/PR of the Abia State University Medical Students’ Association Journal and The Student Pulse Magazine.

Darlington won the Eriata Oribhabor Poetry Prize in 2014, and his poem, “We Are More Than Numbers” was included in the top 100 poems in the Nigerian Students Poetry Prize in 2017.

He recently joined Outer Shell Africa as a Content Manager and his strong belief that people with visible differences should lead free lives as everyone else, convinced him to become a volunteer.

You can reach him via Facebook or visit his site.

 

Advisory Board

janus_christine-200Christine Janus, the CEO of International Alliance of Dermatology Patient Organisation – IADPO

Christine Janus is responsible for the building of an International Conference for Dermatology Patient Organization leaders (IDPOC.org) and establishing an International Alliance for Dermatology Patient Organizations.

She has been a passionate advocate for patients in Canada as the Executive Director for the Canadian Skin Patients’ Alliance (CSPA).  Over the course of 8 years, Christine built the CSPA into a vibrant and effective voice for skin patients; it also offers education and support to those afflicted with skin conditions, diseases and traumas.

Christine has lead the development of five national award-winning initiatives: two research-based National Report Cards on access to Dermatological Care and Treatment in Canada, Canadian Skin magazine, a National Psoriasis awareness campaign and a unique patient-focussed website. See the CSPA report card for a thorough analysis of access issues faced by dermatology patients in Canada called “Skin Deep : A Report Card on Access to Dermatological Care and Treatment in Canada”.

andrew-thompson-rn200Dr. Andrew Thompson 

Andrew Thompson is Reader in Clinical Psychology working in the Department of Psychology on the NHS Clinical Psychology Doctoral Training Programme. He is registered as both a Clinical and Health Psychologist and practices in the NHS in South Yorkshire, where he provides a Clinical Health Psychology Service for people adjusting to long-term health conditions (primarily working with people following treatment for cancer, people living with diabetes, and people living with skin conditions).

His research interests focus on exploring psychological reactions to disfiguring conditions with a view to developing psycho-social interventions at both an individual level and social level. He has a particular interest in psychodermatology. He is the author of approximately 50 peer-reviewed journal articles and book chapters in this and related areas. He is co-author on a forthcoming clinical manual that provides a guidance on the use of psychosocial interventions aimed at supporting individuals distressed about their appearance as a result of disfigurement (Wiley, forthcoming). He is an advisory to The Katie Piper Foundation, a leading charity for people living with the aftereffects of burns, and he has collaborated with other charities such as Changing Faces and The Vitiligo Society.