Ogo Maduewesi, Founder/CEO
Ogo Maduewesi is an Ashoka fellow/Making More Health Fellow, a Social entrepreneur, a mentee writer (writes on a range of subjects from Positive self-image, self-love, confidence-building, Skin health and visible differences). She is deeply passionate about psycho-social challenges and Rights of Sub-Saharan Africans living with Skin conditions and visible differences.
Ogo Maduewesi is a pacesetter; , a Vitiligo patient leader. the founder/CEO of Vitiligo Support and Awareness Foundation – VITSAF, the first Vitiligo patient-driven organisation in Sub-Saharan Africa. In her, nearly 10years of experience as a non-profit professional, Ogo has inspired, contributed immensely to the Vitiligo community globally, building up an invaluable network of Vitiligo support groups in Sub-Saharan Africa and abroad. Living with Vitligo, a condition in which the pigment is lost from areas of the skin, causing whitish patches, often with no clear cause, Ogo has gone through the various stages of the condition; including the psycho-social effects, it brings to the patient, especially the loss of self-confidence. Living to tell the tale, Ogo lives to serve people who are going through the same situation, inspire, educate and build them on how to manage, live and or overcome the struggles. Ogo’s work with Vitiligo inspired Outer Shell Africa.
Ogo is deeply passionate about making a big positive difference in lives of sub-Saharan Africans living with Skin conditions & Appearance-related concerns. She recently re-launched her social clothing and accessories store Vogo Designs www.vogodesigns.com.ng through which she strives to build self-confidence and support VITSAF.
Ogo is a Digital Storytelling enthusiast (see here some productions ‘Tales of Vitiligo1‘, ‘More to Life‘…). She is a Director at International Alliance of Dermatology Patient Organization –IADPO.
Izu Ojukwu, Filmmaker (Partner in Film and TV production)
Izu Ojukwu is a respected, multiple award-winning top Nigerian film director and filmmaker. A very detailed filmmaker; he is meticulous, prudent and world class. Izu’s directing and production quality is top notch. He has got over 15 top rated films to his credit.
Izu was once touted as the “Steven Spielberg of Nigeria” as he worked predominantly on action films. Izu is a technically driven director known for his unorthodox camera work and visuals. Izu went to the New York Film Academy, where he studied Filmmaking and Directing.
Izu Ojukwu is the CEO and Creative Director of House of Illusion. He has Directed and continues to support all awareness and enlightenment productions of Vitiligo Support and Awareness Foundation – VITSAF from inception. Working with VITSAF inspired Izu’s interest in Skin conditions & Appearance-related concerns, especially the psycho-social challenges of it all.
Disha is a development communication professional and a documentary filmmaker based in India. She has worked with various nonprofit organizations across the country, on a number of issues ranging from climate change to education to women’s rights. She is currently working on a self-initiated, an independent documentary on Women and Religion in India. Being a feminist, she is a firm believer of equality and strives to build a gender just world for women and girls by using communication as a tool.
She is associated with Outer Shell Africa as a Communications Consultant and provides her services voluntarily. She assists in developing communication campaigns and materials for the enterprise.
Christine Janus is responsible for the building of an International Conference for Dermatology Patient Organization leaders (IDPOC.org) and establishing an International Alliance for Dermatology Patient Organizations.
She has been a passionate advocate for patients in Canada as the Executive Director for the Canadian Skin Patients’ Alliance (CSPA). Over the course of 8 years, Christine built the CSPA into a vibrant and effective voice for skin patients; it also offers education and support to those afflicted with skin conditions, diseases and traumas.
Christine has lead the development of five national award-winning initiatives: two research-based National Report Cards on access to Dermatological Care and Treatment in Canada, Canadian Skin magazine, a National Psoriasis awareness campaign and a unique patient-focussed website. See the CSPA report card for a thorough analysis of access issues faced by dermatology patients in Canada called “Skin Deep : A Report Card on Access to Dermatological Care and Treatment in Canada”.
Andrew Thompson is Reader in Clinical Psychology working in the Department of Psychology on the NHS Clinical Psychology Doctoral Training Programme. He is registered as both a Clinical and Health Psychologist and practices in the NHS in South Yorkshire, where he provides a Clinical Health Psychology Service for people adjusting to long-term health conditions (primarily working with people following treatment for cancer, people living with diabetes, and people living with skin conditions).
His research interests focus on exploring psychological reactions to disfiguring conditions with a view to developing psycho-social interventions at both an individual level and social level. He has a particular interest in psychodermatology. He is the author of approximately 50 peer-reviewed journal articles and book chapters in this and related areas. He is co-author on a forthcoming clinical manual that provides a guidance on the use of psychosocial interventions aimed at supporting individuals distressed about their appearance as a result of disfigurement (Wiley, forthcoming). He is an advisory to The Katie Piper Foundation, a leading charity for people living with the aftereffects of burns, and he has collaborated with other charities such as Changing Faces and The Vitiligo Society.